Well we are in Madrid, I'm a little moquito, so my parents take me to the clinic Moncloa to stay calm, the doctor looks at me and tells my parents do not worry that with a spray and vacuum will be better and so happens.
Tomorrow we go to the neuro-pediatrician again, we are very excited to see what he says, because mommy and daddy are cansadísimos, sleep is that there are turns three more hours or less, I sleep with them, touch it makes my head on your arm, if you fall asleep and I have a crisis, that notice to move, although not usually fall asleep, but for me better I am very arropadito with them. I am very swollen, but nothing happens, the doctor will see me soon and will look at corticosteroids.
Well we arrived early, as always, the doctor has not arrived yet so we waited in the waiting room, probably will be the first. I called to make me the EEG, low to daddy, and then up again, there to await the outcome and the coming of the doctor.
While we wait I have a crisis to another, but clearly, more Light. And touches us, that nerves to see what he says, as will be the test, what do you think the doctor reduced my crisis ?.... sure everything will be better.
entered, the doctor is a bit distant and a bit serious, try to keep the guy, but is that mom has a very bad idea, talk a little with the doctor as it has been this month, although he was aware of phone because mom called him, so start looking at the graph of EEG, Mom asked that such is, if it has a very slow path (that means that my brain will not like the rest, which is suffering from the crisis) and the doctor says yes it's wrong, I think he realizes that their medications do not work for me and that epilepsy is not as simple as we originally said. Mami I notice very dry and very distant, almost eager to finish and our turn in the consultation, slightly modifies the medication and tells us stay in touch as hitherto, by phone, Dad asked if we and appointments says no need, already on the phone we would see.
Mami very sad and bad out of the consultation, being on the street gives daddy dizzy and have to keep this time until he is defeated. Just think back to the same thing lost another doctor who is not able to recognize that things are slipping from their hands. Everyone is calling and my parents are not able to tell the truth at all, must first composed them before telling others, all had put our faith in this doctor, so ......... ..........
Well it's Sunday and we're leaving to go home, we're not happy, mummy returns to have red eyes, think again about spending time crying in front of me does not but I intuit and therefore I get a little uncomfortable, I do not feel well, daddy's face is also very sad, I notice it, but hide their feelings behind that beard makes me so tickled when he plays me.
A photo together the four, try to laugh a little, forces have to reset and start from scratch.
resume Cuesta many things, my parents are very disappointed, but they have no other, turn their ugly moments, they are lost for the umpteenth time, look at me and thought I read, what will now we where going to throw? meanwhile, back to work mom and dad too.
But their heads are still trying to find solutions, find hope, to not let the door without knocking, nor a without a single test, without visiting any site.
To top it off, I turn to put more unwell and other income, was what we needed, it was very hard for my titas, I'm with some coughing, but not both, mom gives me a snack and leave me alone with my father, my auntie lives in the house next door and now they both are, Azael is playing with raw outside, all seems calm.
start with a cough a bit strange and dad built me \u200b\u200band start to vomit, that strange thing is my snack with something else, I think it is mucus, I start to get a little choked, me daddy but I can not help, call one of my running titas, when comes home and sees me and sees the face of despair as they can catch me daddy and run the car, do not tell anyone anything, and run off to the hospital Perpetuo Socorro. Meanwhile mom had called ahead and heard me coughing, start calling repeatedly, something is wrong, I feel it is not normal that Daddy does not pick up the phone. Tita calls home and asks them to call daddy, X was expected to stop there, call them! tita said the other, I do not open or Vero answer me! not what happens, Mom and more and can not hear over the phone away Azael say that Dad and Aunt left in the car with Aimar. God and left without warning, something happened!. Mommy knows what I have to go hospital and runs del trabajo, coge un taxi y cuando está llegando ve el coche de papi, mal aparcado, con los cuatro indicadores y sin cerrar. Ya pasó algo grave, entra sin decirle nada a nadie y ve a tita llorando en la sala de espera, no le pregunta nada, sabe exactamente donde está urgencias de pediatría y entra directamente. Las chicas ya la conocen y le dicen en que BOX estoy, no estoy bien, casi no puedo respirar, estoy vomitando mucha flema y respiro muy agitado, el médico está hablando con papi, mami entra y escucha que me llevan en ambulancia medicalizada al Materno Infantil y ella ni se cree que otra vez estemos en esta situación.
Hay que ponerme un aerosol mientras para aguantar, así que me quedo con papi y mami sale to ask as it is and tell auntie we go to Mother, she wonders what happened, Aunt is pregnant and is very nervous, crying, tells him he has been the worst moment of his life, tells him that the trip was made eternal, even though daddy was running like crazy, I thought it would not arrive in time, I was almost blue and not stop to throw phlegm through the mouth and nose, she had me in his arms and dad driving have been only 20 minutes away, but I found 200! Mommy tries to calm down, as it is not good to be so nervous.
I have to decide Emergency Maternal and ride the UMI, again here I can not believe, this time without sedation but with oxygen, many medications and cables again. Thank God one step at night, the next day I go to plant sprays and the shock treatment of the ICU, they make me improve a lot but I still have a lot of income.
physicians suggest that this plant is due to the voluntary release of the last entry, but mom says they have medical papers showing that for 5 days was perfect, that his lungs were camaraderie and had no respiratory problems and Mommy reminds them that they are doctors and know well that bronchiolitis is now and then, it's nothing new.
Meanwhile, Dad tries to talk to the doctor in Madrid to tell her the situation, but does not answer the phone will be bundled in consultation! think daddy, mommy also tries a little while later, he also answers the call, good call me when you see the call, he knows my number!. How wrong they are, they try again two more times and give up, the doctor will not return to assist me, to this day has not called back to ask me, "which turned out to be human and professional," that is what I hear from mom every time he talks about him and always ends by saying, "but there should be no bad blood, we have enough problems and concerns us now. "
While I am hospitalized, my parents realize that this doctor does not work and inform themselves and learn that there are special units of Epilepsy in Spain, and was pleased, it is important to take me to one, So they think, because it is a site specializing in my condition, who better to help them. They contact my insurance ..... AS and hand over a petition which asked my pediatrician referred me to this unit due to my illness and poor outcome. Another door opens, another hope. ...... AS responds that grants us take a unit of epilepsy, do not consider it necessary because they provide me with neurologists and with that is enough. Enough? wonder my daddy, do not realize that neurologists I have been for nothing?. Nothing mommy and daddy make resources but also look for their media, Daddy sends messages and calls to various epilepsy centers, just answer one, TEKNON CLINIC. The consultation is a bit expensive but the doctor said to mom that there will have many things clear, and does not intend to "give us appointment to when you can, right now the hospital is small but since we go out there to have "
At the same time to me in the hospital, I spread the Rota-Virus, another disappointment again, I start to have a" poop "a very liquid and vomiting little from time to time. This is the fear of mom, whenever I do get hospitalized illness, I am the worst baby gives it, I'm over 10 days with the virus, I have to put medication and serum because they are dropping me important values Laboratory tests of blood, but I ended recovering. Change of destination, this time let's Barcelona, \u200b\u200bDr. Ru ...... espera.Ya us we are in June, and there is little to see a light, but still do not know.
will continue ..........................
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