Wednesday, August 25, 2010

Free Doujin Pokemon Online

story of my life 10

Well, we're in Madrid again, azael come to pick up and go to the people of dad, Tito come looking for us and lead us in his car. My parents never stop talking on the phone with the family, especially Mom (on the phone Daddy overwhelms a little bit) so it is she who tells it all, Dad is happy but at the same time a little nervous. Let's spend a few days the people, this year so my tests can not come on vacation in August, as they do every year, so we took to see family and friends. I took a few days almost without crisis, with the new treatment have been greatly reduced but I can not believe it mom, the truth is that I did not. This is what usually happens every time we change the medication.

Today we dropped "the pipe" to sit on the terrace here is fine and we spent a great time until dinner time, and we were going to go home when K dad's cousin and his wife N invite us to his home for dinner there. Let's all very comfortable and we are there when I start to fall asleep. This is the most uncomfortable of daddies, when I start to fall asleep, do not stop looking at me all the time, although it took exactly 7 days almost seizure free, they know that sooner or later it will start again and that time is tonight, give me a very strong crisis and N, who are not used and is also very sensitive for their future motherhood, it gets a little bit scared and nervous. My parents too, "and was taking" her daddy says mommy, mommy is just nods and somewhat sad, but try to hide it.

From this moment begins the agony again, on without breaks, the sleepless nights over three hours. Mommy called the doctor and tells him that have become the crisis, the doctor begins to try to regulate the drug, but not on top mom does not know if the crisis or the treatment begins to realize that diverting her eyes.

The regulation of medicine does not work so we introduce another, the LUMINALETAS, but this also improved. In the town very well, we learned the new pool Cilleros and it is great, my brother passed it P pipe with a girlfriend of hers who is the daughter of T and A, Mommy and Daddy's friends, the poor is one of the few days that really happens Vacation and due to my illness this year has not enjoyed, I've gotten myself a little in the pool house of my auntie, hopefully next summer I will be better and we all enjoy.

go home now, has been shortie, but intense, next year will be better ........... insurance. We said goodbye to the titas and cousins, all are sad but hopefully, hopefully, the doctor does not take much to give us the test results.


We are in the palms, I'm less hinchadito, all notice and they are very happy they do not know is that I will have to medicate with HIDROALTESONA (steroids) because I have damaged adrenal glands taking this medicine so long, Dr. R already angry at the time when he learned he had long been taking it and withdrew, but the damage was done. My dad still wanted to call the doctor in Madrid as a reminder that a patient was so severe in Las Palmas and tell about the steroids and my glands, but Mom tells him let's not worth it, the important thing now is to pull forward. The doctor called us almost every day for medication, it's incredible dedication to their patients, we see that he likes his profession and likes to heal people. We are finishing

July, Mommy called the doctor a day in the morning because I had not to vary one night a little "movidito." The doctor gives us some guidelines and mom to the doctor asks how's the test report and it states that there is very little and what is certain is that their epilepsy is local and is operable, Yeya we are at home mommy and cut phone and begins to mourn and to embrace them all, Yeya to B (his friend) and everyone, try to call dad and tell the whole world Dr. just need to finish the report to go to AS ..... to request the operation.

We are in August and the doctor is on vacation in South America, but nonetheless continues to call every day, says that between 10 and 20 ends the report and tells us something. Today is day 12 and we called the doctor, the study is completed and has the report, we can apply the operation to the insurance company because since we have the authority and the doctor we enter the holiday date to the operation as soon as possible because I have not stopped crisis and time is not playing to our favor.

addresses AS Mami ..... and requested surgery. What a surprise IS THE DENIED, good according to what they are saying is you have to wait for an answer of the claim because my file is in Madrid and from here you can not do anything, mom asked how long it can take and you answer is not known, they have a few months to respond. My parents can not believe it, you can not imagine the response, so you have to sit home and watch it do I have to operate in September or yes, this can not be further delay.


So we are home and my parents are very serious, we must decide what to do and how to get the money, the bank can no longer think so much so that there is no other helps to ask friends and family , but nonetheless with the help of all will not reach thus was born the idea of \u200b\u200basking the rest of Spain with the idea that the day the insurance company will pay them back the amount you donate to my operation and that all money donated comes anonymous as someone else I needed to heal.

Well, that is armed is incredible, the people "CILLEROS" this revolution, are all united by the cause and are doing everything that I regain my smile but not only them, also are transmitting these desire to help the entire Sierra de Gata, from there all are helping friends and my parents do not know how agradesercelo, they are my grandmother my family in the village. Coria also is working and is helping us, from here I thank you and I send my love to my family Extremadura, We love you. And here too are all dumped to the cause, friends, / Colleagues of mom and dad and my family as not Canaria, although I know, I want.


not fail to read my blog, I will continue to count as things go and I will write from barcelona.BESOS



now to August 25 and we have a third party, and is less heartfelt thanks, AIMAR AND FAMILY.

Sunday, August 22, 2010

How To Write A Letter Of Encouragement

story of my life 9

Sunday, just arrived in Barcelona on the AVE, and we will enter the clinic, to see how it is given this week.

We are here with us to the room on the second floor, people are very friendly, we sat and waited for the coming of the doctor or a nurse. We come to see the doctor and that it is Sunday, I told my parents that tomorrow morning I will have a test, a PET, to that accompanying the first MRI, and then I put the electrodes for Video-EEG.


As I'm having a lot of crisis, mommy and daddy take turns to stay awake and take care, however they are so nervous about not sleeping either. I'm also up phlegm again, mom thinks I have set wrong with the air conditioning of the plane and train.

We are a Monday, is 8 and a half in the morning and come and get, let me down for PET, have to be anesthetized and put on a medication through the vein, leaving the box where mom was very difficult because as I prick she gets nervous. Papi goes, I'm numb and in the MRI machine, comes with Mommy and wait outside.

There, I'm half asleep but listen to the doctor that I am quite mucus in the chest and that we must begin to treat it as well continue on Friday may not me the other tests because I can numb again.

We are again in the room, come Dr. T and the nurse to begin preparing the case, the doctor is finishing with another older child who is in the other plant. Doctor arrives and begins the process of placing the electrodes, Mom's account, believed to be 24, have taken about 3 hours colocármelos, the doctor has done with patience and calmness. I'm connected to a computer and I are over taxing on video, there is also a signal that they press when they notice I'm having a crisis, and is recorded on the computer. And we are on Tuesday and the doctor comes to see how it is going and also happy because it is the result of PET (we note that this is private, go quickly), tells us that it is likely that my epilepsy is a problem on the right side of the brain, but that everything will be confirmed with the results of other tests. Step

almost 5 days connected to the computer, the doctor is about four times daily to the room, both morning and afternoon-evening, the hospital is usually about 23 hours apart is also Dr. T is the doctor who helps at the clinic, often called the room to ask about my condition, because in the end I caught another cold of mine, I have oxygen, aerosols, syrups and antibiotics, I have a shock treatment but do not respond well enough to make me numb and the other evidence on Friday, when I commented to my parents they were the moral ground, so much time waiting for all this and having a diagnosis and see if give something to heal and go and grab another cold, jolin that bad luck, Mommy can not help, another setback, is now so depleted that it will very low morale, Daddy has to calm her and encourage her. Well is determined, I can not anesthesia is impossible, but the doctor tells us that as I am a very quiet child and I spend almost all day sleeping maybe can get tested without anesthesia, well let's be positive. While I have the electrodes, the doctor has tried other drugs and I think one is more or less well, Sabril, to see how tough we are.

Friday, I removed the electrodes, taking off everything very well and very fast, but the stick that I have stayed in my head almost 20 days. We went down to try to get tested without anesthesia, Mom prays a lot to make it so that everything goes well and I can do. One test is Magnetoencephalography, this machine only have it in two parts of Spain, and this is the first to arrive, the other not long ago that have acquired a crisis gives me while I make, but overall really good and I can be tested.

After that comes another MRI test consists of two parts, with markers and one without them, this is more complicated, here I must be absolutely still and they still fear that making too much noise in case I get nervous, but I do great, I'm so tired I sleep and not wake up until you finish the entire test. When I wake up I see that my parents are happy to have been able to perform all tests now All you have to wait for the result, which is not bad.

Saturday, we are waiting for the doctor, the doctor tells us that ultimately we can travel, that I'm more of a cold, I almost have to Nens taken to hospital, but you do not, we can return Madrid to look for my brother. Comes the doctor, gives us the pattern of the new medication and told us that now has to study in detail the evidence, especially the video-EEG, which is very laborious, but I said to Daddy and Mommy that probably is the possibility of surgery to Mommy's heart skips a beat, look at daddy and break to mourn, do not believe, at last hope. Le ask the doctor more or less the operation would think that if only the study were some 12,000 € operation will imagine that much money. The doctor tells them to leave some 60,000 € and they are not amazed, despite being a lot of money, as expected, have been referred to similar transactions and are about the money, the clinic also is quite expensive, but worth it, facilities and especially the professionals are wonderful, worthwhile treatment are very friendly and treat us very well, the rooms are for the patient and a companion, but let them stay without putting the two issues because they know they always have to be a awake. Think over to seek money as the most important thing is that I get well, the two are crazy, hug and cry together, and the mess, each take a phone and inform the whole family is great news.

we go from Barcelona, \u200b\u200bbut we're happy, I do not because I have that thing in the head and my parents because they have a hope that I get well. Follow ...................

Friday, August 20, 2010

Kates Playground New Shot

story of my life 8

I'm better stomach virus, I'm about to give us the high, to go to Barcelona. is June 8th and it's already 16 hours, and let in to visit, my dad handed me my lunch today at two half day so they will be ready to come, come, come other daddies, "and mine, and why mommy is not coming to me now and why is the nurse giving me a snack?, jolin something has happened, it's almost 20 hours and was just visiting . There is daddy, I get a little clingy when I hear it coming, I look at it with puzzled face, I want to say I am very upset because they have not come to me before, go and Mommy's wrong, why it is sitting?. I hear them talk to the nurses and mom wants me to catch and put me in her arms, spoil me and tells me he has had a "small incident" has been dropped and had to go to the hospital she is very sad, not I wanted to leave me alone this afternoon, but still feels that it will not be able to travel with me to Barcelona, \u200b\u200b(can not believe that neither it is known, so stubborn he is, this is me, if you know me).

I are discharged on the ninth day, and come to get me, mom does not stay at home or with his foot in plaster, has a torn ligament sprain with more work for daddy, mommy and me mailto injured, but hey crutches she defends. That desire to get home and eat home cooking, it has nothing to do with the hospital.


Mami travels with us, of course. We got off the plane and take a taxi, going to the doctor, the nurse M we had to reschedule the query multiple times, because many times I was going to be discharged but then did something we had to wait. We are in the consultation and the first thing is to become an EEG, again, but this takes a little longer. At a time when nurses call the doctor and out of the consultation, puts on her glasses and starts to look at the chart "in situ". After a while there, looking at the layout of the EEG, was dismissed for a moment and returns to the query.

me finally finish the test and return to the waiting room, we have a girl in front, my parents are a little nervous, but I as I do is sleep. We went in consultation

and the doctor asked my parents my medical reports, he begins to watch them and copy them out, then asks them to recount a bit about my medical history. They tell the most important and explain what have been the drugs that have problems and the impact it has had on me. When completed, the doctor first thing I said is that I withdraw the Hidroaltesona ba (the steroids), because this medication is only a shock medication is administered by a certain time and if does not work and cuts crisis, should be withdrawn because of side effects are very dangerous.

Then the pattern tells us that we will have to go on medication because I'm execed medicated and explains that what he thinks is that I have a problem with the right brain, and might have surgery option but to confirm that you have to get a series of studies specific epilepsy unit. As from the beginning, the doctor tells us that we can advise, but we can decide at any time when making this treatment because the clinic where the study works out a bit expensive, but my parents are clear that they will go all the way to the doctor, it is also the rest of epilepsy units that sent emails and called dad to this day, remain unanswered, for what to ask about how much money is involved. The doctor removes accounts and they said that about 12,000 €, Mom looks at Dad waiting for daddy look and decide, yes, but Daddy does not give option, directly tells the doctor to tell them when I can enter the hospital. They were clear that he needed to know that diagnosis, and Dr. R. ... assured them that after this study at least going to have a diagnosis and it was going to try to guide it was the most favorable position for my evolution.

So the consultation we will know that today we have to enter and get tested, my parents will conmenta the nurse more by mid-next week and will have the money and would enter the reserve. We

to Las Palmas and begins the quest for money, profit that comes Daddy and Mommy pay some extra money charged ...... HA and the rest ask for a credit because the money and the reserve: Meanwhile, to me the withdrawal of Hidroaltesona I do not feel well and have not stopped many crisis and increasingly strong and standing up with his mom is having badly, with both trot is not going to heal well, so daddy (poor), no rest, yo, mommy, Azael and his work, is a super-dad (so says mom.)
I have to cut hair for testing, how strange I am!


Off we go to the doctor, we have to stop in Madrid to leave Azael, it stays there with my godmother and cousins \u200b\u200band we go to the hospital. Azael is thrilled to be with cousins \u200b\u200band because he loves the world, to my parents too.

Here we are all celebrating the passage to the semifinals, we are in July and with the medication change crisis have not stopped to see what this takes us, my parents are somewhat concerned, the study is very expensive and unaware that the doctor can say after having the results, mom's greatest fear you have is that if this can not help us, do not know where to go next, but do not want to think about it now, try to relax than a week of hospitalization will be quite hard.



will continue ......................................

Wednesday, August 18, 2010

Japansese Gropped Subway

story of my life 7

Well we are in Madrid, I'm a little moquito, so my parents take me to the clinic Moncloa to stay calm, the doctor looks at me and tells my parents do not worry that with a spray and vacuum will be better and so happens.
Tomorrow we go to the neuro-pediatrician again, we are very excited to see what he says, because mommy and daddy are cansadísimos, sleep is that there are turns three more hours or less, I sleep with them, touch it makes my head on your arm, if you fall asleep and I have a crisis, that notice to move, although not usually fall asleep, but for me better I am very arropadito with them. I am very swollen, but nothing happens, the doctor will see me soon and will look at corticosteroids.



Well we arrived early, as always, the doctor has not arrived yet so we waited in the waiting room, probably will be the first. I called to make me the EEG, low to daddy, and then up again, there to await the outcome and the coming of the doctor.

While we wait I have a crisis to another, but clearly, more Light. And touches us, that nerves to see what he says, as will be the test, what do you think the doctor reduced my crisis ?.... sure everything will be better.

entered, the doctor is a bit distant and a bit serious, try to keep the guy, but is that mom has a very bad idea, talk a little with the doctor as it has been this month, although he was aware of phone because mom called him, so start looking at the graph of EEG, Mom asked that such is, if it has a very slow path (that means that my brain will not like the rest, which is suffering from the crisis) and the doctor says yes it's wrong, I think he realizes that their medications do not work for me and that epilepsy is not as simple as we originally said. Mami I notice very dry and very distant, almost eager to finish and our turn in the consultation, slightly modifies the medication and tells us stay in touch as hitherto, by phone, Dad asked if we and appointments says no need, already on the phone we would see.

Mami very sad and bad out of the consultation, being on the street gives daddy dizzy and have to keep this time until he is defeated. Just think back to the same thing lost another doctor who is not able to recognize that things are slipping from their hands. Everyone is calling and my parents are not able to tell the truth at all, must first composed them before telling others, all had put our faith in this doctor, so ......... ..........

Well it's Sunday and we're leaving to go home, we're not happy, mummy returns to have red eyes, think again about spending time crying in front of me does not but I intuit and therefore I get a little uncomfortable, I do not feel well, daddy's face is also very sad, I notice it, but hide their feelings behind that beard makes me so tickled when he plays me.

A photo together the four, try to laugh a little, forces have to reset and start from scratch.


resume Cuesta many things, my parents are very disappointed, but they have no other, turn their ugly moments, they are lost for the umpteenth time, look at me and thought I read, what will now we where going to throw? meanwhile, back to work mom and dad too.

But their heads are still trying to find solutions, find hope, to not let the door without knocking, nor a without a single test, without visiting any site.

To top it off, I turn to put more unwell and other income, was what we needed, it was very hard for my titas, I'm with some coughing, but not both, mom gives me a snack and leave me alone with my father, my auntie lives in the house next door and now they both are, Azael is playing with raw outside, all seems calm.


start with a cough a bit strange and dad built me \u200b\u200band start to vomit, that strange thing is my snack with something else, I think it is mucus, I start to get a little choked, me daddy but I can not help, call one of my running titas, when comes home and sees me and sees the face of despair as they can catch me daddy and run the car, do not tell anyone anything, and run off to the hospital Perpetuo Socorro. Meanwhile mom had called ahead and heard me coughing, start calling repeatedly, something is wrong, I feel it is not normal that Daddy does not pick up the phone. Tita calls home and asks them to call daddy, X was expected to stop there, call them! tita said the other, I do not open or Vero answer me! not what happens, Mom and more and can not hear over the phone away Azael say that Dad and Aunt left in the car with Aimar. God and left without warning, something happened!. Mommy knows what I have to go hospital and runs del trabajo, coge un taxi y cuando está llegando ve el coche de papi, mal aparcado, con los cuatro indicadores y sin cerrar. Ya pasó algo grave, entra sin decirle nada a nadie y ve a tita llorando en la sala de espera, no le pregunta nada, sabe exactamente donde está urgencias de pediatría y entra directamente. Las chicas ya la conocen y le dicen en que BOX estoy, no estoy bien, casi no puedo respirar, estoy vomitando mucha flema y respiro muy agitado, el médico está hablando con papi, mami entra y escucha que me llevan en ambulancia medicalizada al Materno Infantil y ella ni se cree que otra vez estemos en esta situación.

Hay que ponerme un aerosol mientras para aguantar, así que me quedo con papi y mami sale to ask as it is and tell auntie we go to Mother, she wonders what happened, Aunt is pregnant and is very nervous, crying, tells him he has been the worst moment of his life, tells him that the trip was made eternal, even though daddy was running like crazy, I thought it would not arrive in time, I was almost blue and not stop to throw phlegm through the mouth and nose, she had me in his arms and dad driving have been only 20 minutes away, but I found 200! Mommy tries to calm down, as it is not good to be so nervous.

I have to decide Emergency Maternal and ride the UMI, again here I can not believe, this time without sedation but with oxygen, many medications and cables again. Thank God one step at night, the next day I go to plant sprays and the shock treatment of the ICU, they make me improve a lot but I still have a lot of income.

physicians suggest that this plant is due to the voluntary release of the last entry, but mom says they have medical papers showing that for 5 days was perfect, that his lungs were camaraderie and had no respiratory problems and Mommy reminds them that they are doctors and know well that bronchiolitis is now and then, it's nothing new.

Meanwhile, Dad tries to talk to the doctor in Madrid to tell her the situation, but does not answer the phone will be bundled in consultation! think daddy, mommy also tries a little while later, he also answers the call, good call me when you see the call, he knows my number!. How wrong they are, they try again two more times and give up, the doctor will not return to assist me, to this day has not called back to ask me, "which turned out to be human and professional," that is what I hear from mom every time he talks about him and always ends by saying, "but there should be no bad blood, we have enough problems and concerns us now. "

While I am hospitalized, my parents realize that this doctor does not work and inform themselves and learn that there are special units of Epilepsy in Spain, and was pleased, it is important to take me to one, So they think, because it is a site specializing in my condition, who better to help them. They contact my insurance ..... AS and hand over a petition which asked my pediatrician referred me to this unit due to my illness and poor outcome. Another door opens, another hope. ...... AS responds that grants us take a unit of epilepsy, do not consider it necessary because they provide me with neurologists and with that is enough. Enough? wonder my daddy, do not realize that neurologists I have been for nothing?. Nothing mommy and daddy make resources but also look for their media, Daddy sends messages and calls to various epilepsy centers, just answer one, TEKNON CLINIC. The consultation is a bit expensive but the doctor said to mom that there will have many things clear, and does not intend to "give us appointment to when you can, right now the hospital is small but since we go out there to have "

At the same time to me in the hospital, I spread the Rota-Virus, another disappointment again, I start to have a" poop "a very liquid and vomiting little from time to time. This is the fear of mom, whenever I do get hospitalized illness, I am the worst baby gives it, I'm over 10 days with the virus, I have to put medication and serum because they are dropping me important values Laboratory tests of blood, but I ended recovering. Change of destination, this time let's Barcelona, \u200b\u200bDr. Ru ...... espera.Ya us we are in June, and there is little to see a light, but still do not know.


will continue ..........................

Diaper Instead Of Maxi

story of my life 6

We are a Monday, led to crisis throughout the weekend, we're waiting for daddy gets to go to the hospital, just poor off the boat and I ran to the consultation of neuro-pediatricians!.

also have to go with the report to start my physical rehabilitation and early intervention. The report specifies where we have to go to make an appointment to get started as soon as possible everything and you can start working out and trying to recover what I lost.

daddy comes and we go to the doctor, start ups and downs of medication, left the hospital with 4 anticonvulsants, although one of them is in retreat, oh I'm still not the ideal dose for me tells us the neuro-pediatrician, so they start increases. Anticonvulsants, like almost all drugs, is in relation to weight, so I try to upload them gradually to the maximum that my age and my body to tolerate. We are in March, almost three times a week going to the doctor, the doctors up the medication but I'm still with difficulty, so again for a visit. Every time we go we discussed and can not rise more drugs! but in the following query re upload. The doctors decided to send me an injection of ACTH, is a very sensitive medication, must be very careful with it because it has many side effects, is almost the last possibility is a strong medication used in children with West syndrome, the epileptic syndrome is a very serious disease and treated with this medicine.

started with him, and also with the daily monitoring of my vital signs, I have to go every day at the hospital Perpetual Help prick and prick before I take vital signs, blood pressure, heart rate and saturation blood oxygen, luckily, the nurses and assistants know us and are very good.

Meanwhile, Daddy and Mommy fixing what my rehabilitation, delivered all the documentation for the early attention, but first we to pass an initial assessment of my state, at the Center Base where you have to fix all this will say that about 8 or 10 months before I make an appointment, my mom gets angry and tells them that it is making "care early "early and start placing complaints. At the same time trying to get other sites and perform such rehabilitation are ASPACE, they are hollow but commented that the services cost 25 €, not to be charged to assist you but it is a partnership and what you give is a small contribution so that everything works well, my parents find it a negligible amount for what it is and decide to make an appointment, you mami me for the first valuation and know the team ASPACE palms are all wonderful and above fully understand what we are going as we are not the first case they have. My early rehabilitative care is wonderful, very loving and kind to me, I think we get on well, though I'm going to spend almost the entire section sleeping.

meantime, these shots I have cut off the crisis, now I have the 4 anticonvulsants ACTH, crises are but I feel sick, do not cry as I express it with a nagging, all are concerned and the doctor who more, decides to withdraw the injection because he says "life is taking no chances" mom gives a downturn because this medication I had no crisis but at the same time does not happen to me worse. A day the same, the seizures start, more and become stronger and pilgrimages to visit.

Today is Friday, do not remember that exact day of April, last night I did not stop and I have very bad crisis, let urgent medical consultation or daddy or mommy going to work, this is the last day I'm going to query ; of Maternal and Child Neurology, the doctor sees me and send me back to the ACTH, Mommy does not understand anything, had not said that he risked life?, ie risk of death, does not understand, I back up the medication, but if the last day he said we were on the tops! my parents feel as if they were flying blind, as if tubiesen no idea what to do as well in that consultation the doctor spends more time tending the phone for his private practice than attending to me. Mommy Daddy has to control not to do anything serious, because it is very angry, all I can say is I am very concerned brain and imply that I'm going to look bad, he may be right but maybe not, he still does not I can assure. This is the trigger for my parents seek out another doctor.

Call 902 from our private insurance and give a neuro-pediatric center of Madrid that has an agreement with AS ...., do not hesitate to call the doctor urgently and undertake to address this Monday. Start moving things and find tickets, we'll stay home godmother.


The doctor is testing me, are like three days and after this tells us is not as serious as we believe, that I will change all medication and I will improve, my parents leave the consultation with joy can not believe that everything is so nice here and so black on the palms, but they stick to the good news, is true that this doctor has shown more interest in me than the other doctor. I change the medication and I removed the ACTH, but sends me a steroid pill.

At first, as always, the medication works, my parents maintain ongoing conversations with the doctor, and I have an appointment for May, also coincides with the fellowship of my cousin so we're anxious to see how they respond to this long-term treatment . The steroids make me swell up a lot and leave me a little more hair, but I'm just looking, that they all say.




day is about the appointment the new doctor, I still have seizures but fewer and looser, and like every time we travel I get unwell, another great cold, and of course, another hospital, my parents are very concerned because the appointment with the neuro- pediatrician is very important because you have to see if I have to remove and hidroaltesona (the steroids I take, and should not be lengthened in time consumption), also have to value my epilepsy with EEG is a test routine check on my head inside, to me they have done since the first time and I'm a bit tired, but good is an occupational hazard, ie I have no choice, lol.
all over me about my illness I am not vaccinated and mom is afraid that re-infect me of something else in the hospital, there are many babies unwell and I have no vaccines, so mom talks to the plant doctor, who met before and told him if what he sees I'm stable, I can be discharged, the doctor says he appreciates but that "protocol", (who is this man, I wonder, because whenever he's in everything and never over does not mean mom) can not give me discharged without being a minimum of days monitored. Then mom decides that if I see well have to take the voluntary discharge.
already well and keep breathing oxygen saturation, she knows suck up my mosquito machine and left us asking my high voluntary and when we get to Madrid we go to the clinic Moncloa is the insurance company to confirm that I am fine.


will continue ............

Monday, August 16, 2010

Bible Black Gaidenonline

story of my life 5

Well, this is the third time we sit down at the computer, I think this entry will be more difficult to write, but you must do to move forward.



Mami comes with "Yeya" in spite of the Doctor, feel and he starts talking, he tells them what is the reason that the child is in that unit, obviously was because I had many crises and were not able to manage with medication so they had to resort to sedation. "Sedation" that seemed more important and dangerous than epilepsy itself, is when the doctor says my situation and said a phrase that mommy is taxed, "Madam, your child has a high sedation, he does well because we were not able to control their seizures, now no longer have them, but the problem is that being so sedated and being so small (only 4 months had just turned at the time), your lungs would not work, then would have to intubation, and there is the danger some babies so small, after intubation, when they removed the tube are not able to resume breathing on his own and then have to go back to urgent intubation in the way that we possibly could, but then you and I we would have to decide what to do with your son. "Mami stays quiet for a moment and Yeya is the speaker, asks if that is usual or occasional, the doctor says it's a risk we need to know is there, but mom only thinks of the phrase "would have to decide what to do with your child, and suddenly interrupts the conversation first Yeya doctor and asks" what do you mean by what to do my son is telling me I would have to decide whether to disconnect the respirator? let's see, my child is here only for epilepsy, "the doctor says I have to be informed of everything that can happen, but mom does not hear anything else, gets up and leaves the consultation Yeya and start holding up to encourage it, do not worry it's not going to happen, I am strong and that everything will be okay, but mom does not hear anything, just think that she will not kill his son, cell phone rings and it is my godmother, Mom begins to mourn and cry and tells all, have to hang Yeya by nerves and takes her home, give him a reassuring infusions and when returns to the hospital.

When reassuring calls and tells daddy, daddy is your greatest support and is not, so he gives forces from far and between that and the force so great that it gives the family makes focus and calm to be able to pull forward. "I have to be strong to help my child" that is the phrase that is repeated every time he falters and he repeated the family, and through it all begins on track, I start down the sedation and thank all the anticonvulsants I have posts, I have no crisis, so every time down until you reach a point of being without sedation, and that's mom and also lift the make friends and family to do so more strongly. After almost 10 days I go to ground, thank God we left the ICU.



Now start almost a month and a half, testing and more testing, a ton of analytical, many punctures, lumbar puncture, urine collection, metabolic tests, another MRI, a path in the head, an operation for a thigh muscle biopsy and up to two venotomy because of the negligence of an assistant preschool section, I started a central line (the venotomy are small surgeries which takes a good vein for one way). Luckily I was transferred to infants and there if you mom is a bit more peaceful.





Many changes in medication, to see whether any I control myself, getting to be 4 anticonvulsants at the same time, but almost no control. At this time I do get another bronchiolitis and I get a bacteria because of the venotomy. Well

daddy comes almost every weekend, what happens fatal, we made so much and there in the distance suffers a lot and hardly sleeps. I no longer above the river, nor look and it has a hard time accepting it, to do nothing and not cry.


We

on Friday, Dad and definitely will come on Monday and I now give me the high, the doctor decides that as I have 4 days without crisis, I can go home and wait there , the results of the tests are to come, Mommy does not know that each time there is a change in medication step 4 to 6 days without crisis or at least much less but then return again, but the doctor decides what to do.

I come home at noon with mom very frightened, and no mistake that night become crises, but is so angry and so tired that choose not to take me to the hospital and keep her looking after me, think that as we are on a weekend and the neuro-pediatrician or the computer does not work until Monday I will be without any specialist to see me that day and for that I stay home, she is fully prepared to look after me, takes more than a month learning in the hospital, the nurses have taught to defend herself me and my crisis is my best nurse.


Well, there are still 5 months to go until the day that decides the operation, but the length of this hospitalization was the most scored in my family, I entered the hospital with a slight smile and left up without mourn.

continue ........

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HELLO EVERYONE, WE VERONICA BENITEZ AND CARLOS DOS SANTOS, AIMAR PARENTS, WE WANT you to know that THIS BLOG HAS BEEN MADE FOR TWO THINGS, THE FIRST IN ORDER TO OPERATE MY CHILD, SOMETHING THAT DEPENDS ON "MONEY" AS NEARLY EVERYTHING, BUT ALSO FOR OTHER FAMILY IS GOING THROUGH THIS HARD WAY YOU KNOW THAT NO SURRENDER NEVER AHEAD ALWAYS FIGHTING TO BE SUPPORTED AND MUCH IN LOVE TO YOU HAVE A little person THOSE ARE OUR CHILDREN, TO THE END AND THE PLACE IS OUR LIFE, BECAUSE OF OUR LIVES COMES FROM YOU.


WANT TO GIVE THANKS TO ALL THE PEOPLE THAT HAVE SUPPORTED IN THIS HARD TRANCE, ESPECIALLY TO OUR FAMILY, SO THAT FROM HERE (LAS PALMAS DE GC) AS FROM THE PENINSULA (Extremadura and Madrid) NOS YOUR LOVE AND HAVE GIVEN FULL FORCE AND THOSE OF OUR FRIENDS AND LAS PALMAS DE CILLEROS.


THANK YOU ALL, BECAUSE DESPITE ALL THIS, we consider ourselves fortunate to have ..

What Do U Feel Like After Materbating

story of my life 4

We are in the plane, go home, seizures start again, let mama, azael, grandpa "pa" and I, Mom does not say anything to not get nervous grandfather, but I have been a 10 and do not carry even one hour flight, I was 21 in two hours-long trip, mami know that since we go down the aircraft will go to drop your bags and then the doctor, up in my family there are more people Malita
and can not be together.




arrived to Las Palmas and go to the emergency room of Hospital Perpetuo Socorro, (and do not go to another clinic, my parents have changed private insurance because they believe in this hospital emergency works best, and only work with the new company, not wrong, both doctors and nurses are very friendly and treat us great, now we are in AS ... ., our new insurance company, it is assumed that they are to us as the SS the rest of the people.

The doctor sees me and says he has to move to the Mother and Child, Mom and smelled it, so I was not surprised, you take a look at the hand of Azael and I sent to another hospital, run over with luck that mom points out that the medical emergency department is also working Maternal, has been there before has been to go with me, I said and will say yes and speak directly with colleagues from Mother to know that I'll stop there and that happens to me, the doctor confirmed that the physician himself Cáceres, I have no strength in the neck , or the rest of the body, says I'm hypotonic and also I am disconnected with the environment, not fixed and I looked with her movement. We know how it works

casualty Mother, I'll be all night in the emergency room and in the morning will come to see me or neuro-pediatrician problen then I go up to floor (so she thought) in emergency only let me be a person within so mom tells everyone to go to rest and take care of Azael , Is left alone and they all go, but not very satisfied, but mom has lots of character and said that there are not going to do anything, all ignore him. We entered

mami consultation and explains my problem, the doctor tells him what she thought, to spend the night under observation and tomorrow would be, they tell you to wait in the living room I'm going to click and get a way Depakine, mom comes out and after half an hour you start to get nervous, you know it costs them much prick I have a very bad veins, so I played and questions, the doctor tells you to have known better and I will rise into plant directly it is foolish to have me under observation when he knows I'm going to be hospitalized because my underlying disease is very complicated, so mom sign the papers and say that very soon the call to accompany me to the ward and there we'll explain to cradle and how the subject, let him of all income. Back to the waiting room is already very tired mom, are 23:55 and has awakened from 6 in the morning so the journey begins to fall asleep alone in the waiting room and ask me again , lest you have not noticed and I have gone to ground without a word, we have been misled. Do not even let me go and tell him to wait outside and they will notify, within 10 minutes call the doctor and another man, go to the guard she thinks, and climb, "family of Juan Aimar Dos Santos" is heard over the PA, if it's me, Mom says, (it is day 9, by far the worst day in the life of my mother), "and her husband, asks the boy , "not" Mom says and begins to worry that sickness back again and the knot in the stomach, "and a relative, a friend?, insists the boy, mom says very seriously," I am alone, which is what happens "you know that something serious has passed and your body starts to tremble, that guy is not the janitor, is the chief medical emergency that night, go to this room, sir, we have to talk to you, Mom comes in and from you feel you can not help it, tears starting to like the face, what passes, as is my baby?, lady we had to enter your child in the ICU, we put the Depakine by vein, but still continued with many seizures, we have risen to sedentary because it's too bad, Mom asked if UMI is like the ICU and the doctor tells you a little difference to tranquilize it, explains that the ICU is controlled hospital unit, the intensive care unit, where nurses must not only monitor and in the ICU, nor caring and in the ICU, there will always be a doctor to monitor everything you have children, you are asked to tranquilize and call someone to accompany her, but mommy did not want to upset or scare anyone at home well passing a bad drink alone, all it does is send a message to his work, because today is embodied by motherhood, and will be not going to get, your baby, or I am very serious and and it says a colleague to contact your company. Upload

to me, I'm sedated, with many cables, roads and equipment, I have taken a central line, which has been very difficult because my normal veins are not good, I have made many medications, but I'm with crisis, Dr. decides to go that night sedation, and a little more and a little more, well until 3 am, at last reach a point where I have no crisis, just wait mom, it's 4 and has to go home, you have to clean up and tell all the family, is a difficult shot to leave but there is no other.

Mommy and Daddy wake up call to the mobile, tells what happened, Dad is still ongoing in Caceres, and it is very bad, asks permission to come on Friday. The entire family as well but decided not to tell the titas, none is to be scared much, just tell them that I entered, but on the ground. 8 in the morning and you're mom again here, comes with Grandma "Yeya, at 10 the doctor will talk with her and explain that I look. This time the specialist will not take five days, that same morning be there. It is now 10, called to talk to her mom, and is the most horrible of the world, the doctor is very hard and his words leave a mark on mom that he was not ever clear, for it is very hard to remember this time, but you have to tell it is not morbid, it's just the reality of what happened and the pain of a mother who loves her children and see how you can lose one of them.

For now I'll stop for a while, then continue to count, we need a break, continue ............

Sunday, August 15, 2010

Day 28, Negative Pregnancy Test

story of my life 3

Hi, here I am, I'll keep telling you my busy life.


You know we travel, how exciting!, going to celebrate my baptism I

I'm back on top of Bronchiolitis mailto is that I have not had my second payment was in December, not epilepsy, just a cold chair, a normal mom thought there was nothing to do with mine, but indirectly if that will condition my life. Only 6 days I entered and I was discharged for good night, was on Mom's Birthday, what a birthday present and what a comfort to me, I'm hardly when Santa Claus went home and left my gift, but whether I time, moreover, this income was calmer, and we knew the nurses / os infant and all are very good and kind to us.

So, the night before catching the plane, the emergency room of Santa Catalina, wing my mom struggle with this, I do not want to put me that, I do not care who says it is to heal, but hey mami, you will listen because I want to get well for my party.




We are finally on the peninsula to be baptized, we are about to come in February and to start my deteriroro.

my family arrived in Las Palmas and People's parties start at last on February 3, San Blas, the whole party town, all hunters, including my dad and my brother Santo waiting to shoot, but that disappointment, this year hunters are angry and no shots, it seems that even they predicted that for me it would be a happy holiday, only applaud, do not shoot, but good the rest of the party is, Dad has fun as a toddler, and I in my cart, half asleep most of the day for my medication, which apparently is leaving me very sleepy. Good night falls, it is bedtime for dad and the rest of the family has been an exhausting day, we, too, and that starts again after about 10 days without a crisis, that night my mother has about 20 and nerves stops counting, another Stesolid, and does nothing, at last I sleep in my body is tired.

The next day we're going to Cáceres, my mom says I've been very sleepy all day, I wake up or not to eat, that's very unusual for me, I assure you, Mommy is a little worried so they decide that since it will take me there Cáceres Hospital San Francisco, is a private hospital, is that I have no social security, my dad is an officer and so we have to go private first, we have private insurance . We treated fast and we send that we see the pediatrician, is very friendly but he tells mom that I'm really bad, I'm "off" and that did not keep the neck. Mommy question which means that and say I'm as lost I do not do what I have to do to my age, mom gives him a pain in the stomach and says he can not be, that until a few days was perfect, it will be that I'm tired because last night I had many crises. The doctor says he does not believe, we go to public Cáceres quite worried, the audience is close and we even walking, Mom and Dad begins to mourn and reassures, are all there and their faces say it all, this does not look good , think my daddy.

went into emergency and the doctor gets scared and begins to call evidence really nervous, says I have a status epilepticus, a continuous crisis, Mommy means a stroke and falls, chaos will quickly form on the query and run away with me to give me a CT scan, mom is crying a lot better but, begins the ordeal of all, here is triggered the worst.

Make the tac and everything is fine, they say, Mom still today do not remember that they did not meant that the doctor was also very scared, I rise to the plant and continue to crisis, while Therefore, Azael falls in the street and made a wound in his hand and caught 5 points, my mom thinks he can not more, but if we can, with the help of the people we want to pull ahead. ; The doctor decides that the best will take the Perpetual Help of Badajoz Cáceres because UVI UVI no child, and she is very wrong.

We moved to Bangkok, I have to go alone in the ambulance, no dad or mom, they go in your car, is the worst trip of your life, Daddy is very tense and Mommy will not stop mourn All way we get about the same time, I was a little before, look at me and I enter, tell mom do not worry it sure is a mismatch of the medication, that it often happens, may be up to catarrito I have, everything back to normal, I put RIVOTRIL by vein, are the drops that take new and improved a lot, It's Friday 5, the next day was my baptism and I have to stop everything. But in the end the neuro-pediatrician Badajoz comes to me and tells us that if all goes well tomorrow I can be discharged and so happens, we will Cilleros, up and running again at the end if there is baptism.




Here I am with godmother and godfather, I put before the image of San Blas and La Virgen, my auntie has a hard time to stay, I did not help I'm very lazy.

not totally asleep I keep my head or my arms or my legs but I can baptize, was the illusion of mom, I was more calm if I was vendecido by God, she has great faith because he says that God will help me to get well, the ceremony is very intimate, family and the priest . The celebration is done in Coria, a town near where they live Cilleros my titas, is the family and intimate friends of the people, have fun in what it is, but we are happy because we could celebrate, Mommy's ceremony gets a little sad because you remember their loved ones are gone, and especially my grandfather John, is the father of my father, I took his name as my dad call me Juan Aimar, they pray a lot for me to help us.

is day 7 Azael s birthday, so celebrate all together, I'm weird, but I'm with them, tomorrow we're going to Las Palmas and pass by the consulting neurologist to see me.


Friday, August 13, 2010

Should Breasts Be Considered In Bmi

story of my life 2

Hi, I'm telling my story where I left off.

That day I was hospitalized, was 10 days making me several medical tests, ultrasound of my head, EEG, MRI and laboratory analytical following. The Neuro-pediatricians did not come to me until the fifth day in hospital, mom was angry enough, did not understand it take so long to come to me when my income was just about neurological problems, seizures said. In the hospital had "crisis" and they call 3 days after I arrived and put me Depakine, an anticonvulsant, by vein. Two days later, when he finally appeared a neurologist ordered several tests, Mommy asked many things, the poor thing was so nervous I did not know to tell or ask, I was very scared. The doctor diagnosed epilepsy and would if I was going to be serious or transient.

After
I passed the oral medication, quickie to send me home and told mom to request an appointment with the neurologists in the outpatient, Mom thought it would be faster since there was very little, but ....... . "Let me report high and I will call", that's what they said. The high I got it on November 31, we went home scared, but happy, was back in house together.

December was one of the rare months in my evolution, I went from having a crisis every 3 or 2 four days, have 10 or 15 in one day, almost every time I wanted to fall asleep. I not rest, my parents did not rest, in general, my whole family and our friends were so nervous they did not rest anyone. And mom, call call you to consult neurologists to give him an appointment.

December 31, how exciting, my first year again, just born and already we changed the year. What a good night, my mom does not even remember how many "crisis" I could not not eat, my first STESOLID, another anticonvulsant, rather a soothing, fast acting inserted through the rectum.

finally arrived in 2010 and I still walk to the doctor, but still growing very well, as everyone was smiling, as happy playing with Azael me, my brother, bufff and when I heard my grandparents and I tell you, laughing out loud, but every time I had more daily crises.



My parents they were well, and talked with the secretaries of the consultation to give you quick appointment to see me, we finally met, 29 January, nearly 60 days after the day of my discharge.

I get several crises in the waiting room, and another mom who was waiting for it says to the doctor and I go before I give any to them, it was strange people and I slept, I only get when I'm falling asleep. Really scared mom asked the doctor if it is very serious and says she does not look it because my progress is good, that the worst would be a lasting epilepsy but does not believe it to have trouble, Mom asked again, but is it normal for a baby resist this amount of daily crisis? "I was not going to die, right? Dr. says no worries it will not be so serious, send me some drops that I'm sure I will go very well, between that and the first drug, together of course, I will improve.

And I do, but only for a few days from there begins I decline. January was my last month of smiles.

travel to Extremadura in February, I know daddy's family, I will be baptized in his village, Cilleros, a beautiful town of Cáceres, Dad is already there, is making progress and looking forward to my grandmother finally know, my cousins, my cousins \u200b\u200band my aunts and uncles are eager to be with me, will be a big event, plus the day after my baptism is the birthday of my brother, Azael turns 7 years and is the first Once they are the two families together on his birthday, the village is above party, is San Blas, the pattern of the people, everything was elegidísimo to be perfect and happy, but my illness gives us no respite. We enjoy going to stop.

continue .......


Chocolate Oscar Molds




born on October 5, 2009
in Las Palmas de GC
despite birth
3.480 k, I measured 54 cm at birth cry
all normal



As you have just read, was born on October 5, scheduled cesarean, my parents, my brother and the rest of my family were very happy and very nervous, it went very well and all I knew, I was born perfect and very pretty, everyone said it was too big and I looked like daddy, I like him.

I had a normal evolution of a baby during my first month of life, smiled, cried and grew well.



was really getting mono, when mom noticed that occasionally had a "tic", and call it that, in the leg and left arm. Requested time for my doctor but before to reach appointment broke my "disease." With 45 days of life, while trying to fall asleep, I saw mommy about unusual movements of the body, thought at first it was just a normal movement of a baby when he dreams, but the minute I came back to repeat the same thing but this time with more strength and I stayed with my precious eyes blank.

There, mom ran with me and with her cousin to the emergency room of the Clinic Santa Catalina, I saw a doctor and many nurses, all were frightened and I was sent to Mother and Child in Las Palmas de GC, the more scared of course my mom and her cousin.

running
called Daddy and the family, I was going by ambulance and children's hospital emergency highlight of my island, because the doctor said he was very serious, and the truth is that not wrong. I was beginning to have symptoms of my illness, drug-resistant epilepsy that would impair my physical and mental.

My first entry and the beginning of the struggle of my parents and my family. After that have been many more, many ambulances and a lot of revenue. Comings and goings at the hospital and many tests in my little body. This was only the beginning.