Sunday, just arrived in Barcelona on the AVE, and we will enter the clinic, to see how it is given this week.
We are here with us to the room on the second floor, people are very friendly, we sat and waited for the coming of the doctor or a nurse. We come to see the doctor and that it is Sunday, I told my parents that tomorrow morning I will have a test, a PET, to that accompanying the first MRI, and then I put the electrodes for Video-EEG.
As I'm having a lot of crisis, mommy and daddy take turns to stay awake and take care, however they are so nervous about not sleeping either. I'm also up phlegm again, mom thinks I have set wrong with the air conditioning of the plane and train.
We are a Monday, is 8 and a half in the morning and come and get, let me down for PET, have to be anesthetized and put on a medication through the vein, leaving the box where mom was very difficult because as I prick she gets nervous. Papi goes, I'm numb and in the MRI machine, comes with Mommy and wait outside.
There, I'm half asleep but listen to the doctor that I am quite mucus in the chest and that we must begin to treat it as well continue on Friday may not me the other tests because I can numb again.
We are again in the room, come Dr. T and the nurse to begin preparing the case, the doctor is finishing with another older child who is in the other plant. Doctor arrives and begins the process of placing the electrodes, Mom's account, believed to be 24, have taken about 3 hours colocármelos, the doctor has done with patience and calmness. I'm connected to a computer and I are over taxing on video, there is also a signal that they press when they notice I'm having a crisis, and is recorded on the computer. And we are on Tuesday and the doctor comes to see how it is going and also happy because it is the result of PET (we note that this is private, go quickly), tells us that it is likely that my epilepsy is a problem on the right side of the brain, but that everything will be confirmed with the results of other tests. Step
almost 5 days connected to the computer, the doctor is about four times daily to the room, both morning and afternoon-evening, the hospital is usually about 23 hours apart is also Dr. T is the doctor who helps at the clinic, often called the room to ask about my condition, because in the end I caught another cold of mine, I have oxygen, aerosols, syrups and antibiotics, I have a shock treatment but do not respond well enough to make me numb and the other evidence on Friday, when I commented to my parents they were the moral ground, so much time waiting for all this and having a diagnosis and see if give something to heal and go and grab another cold, jolin that bad luck, Mommy can not help, another setback, is now so depleted that it will very low morale, Daddy has to calm her and encourage her. Well is determined, I can not anesthesia is impossible, but the doctor tells us that as I am a very quiet child and I spend almost all day sleeping maybe can get tested without anesthesia, well let's be positive. While I have the electrodes, the doctor has tried other drugs and I think one is more or less well, Sabril, to see how tough we are.
Friday, I removed the electrodes, taking off everything very well and very fast, but the stick that I have stayed in my head almost 20 days. We went down to try to get tested without anesthesia, Mom prays a lot to make it so that everything goes well and I can do. One test is Magnetoencephalography, this machine only have it in two parts of Spain, and this is the first to arrive, the other not long ago that have acquired a crisis gives me while I make, but overall really good and I can be tested.
After that comes another MRI test consists of two parts, with markers and one without them, this is more complicated, here I must be absolutely still and they still fear that making too much noise in case I get nervous, but I do great, I'm so tired I sleep and not wake up until you finish the entire test. When I wake up I see that my parents are happy to have been able to perform all tests now All you have to wait for the result, which is not bad.
Saturday, we are waiting for the doctor, the doctor tells us that ultimately we can travel, that I'm more of a cold, I almost have to Nens taken to hospital, but you do not, we can return Madrid to look for my brother. Comes the doctor, gives us the pattern of the new medication and told us that now has to study in detail the evidence, especially the video-EEG, which is very laborious, but I said to Daddy and Mommy that probably is the possibility of surgery to Mommy's heart skips a beat, look at daddy and break to mourn, do not believe, at last hope. Le ask the doctor more or less the operation would think that if only the study were some 12,000 € operation will imagine that much money. The doctor tells them to leave some 60,000 € and they are not amazed, despite being a lot of money, as expected, have been referred to similar transactions and are about the money, the clinic also is quite expensive, but worth it, facilities and especially the professionals are wonderful, worthwhile treatment are very friendly and treat us very well, the rooms are for the patient and a companion, but let them stay without putting the two issues because they know they always have to be a awake. Think over to seek money as the most important thing is that I get well, the two are crazy, hug and cry together, and the mess, each take a phone and inform the whole family is great news.
we go from Barcelona, \u200b\u200bbut we're happy, I do not because I have that thing in the head and my parents because they have a hope that I get well. Follow ...................
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