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story of my life 15

NOW, you are done this part so hard in my life, and spent the operation and everything went great, is on good authority that many people have been anxious to know that I am. For I am well, very stable and very happy because mommy, daddy, Azael, and the rest of the family, I convey the joy that they have, it must be because the operation was a success. Everything has been very hard and very emotional but it was worth it, no doubt. So I tell you a bit as we have spent these weeks ................... .........

October 6th, and celebrate my birthday and my parents are very rare, could not sleep almost all night, I actually have slept great, they have nerves because I want a lot but I'm sure everything will out well and after the operation to start a new life, next year we will celebrate two birthdays on 5 because it was the first day I saw daylight and 6 because the medical team will make re-awakening and re- appreciate and enjoy life.

is too early and I hear many voices in this room, HUYYYYYYYYY are my titas and my cousin Sara, have come to be with us on this important day, mother that noise! do not realize that I just want to sleep, ah is the doctor comes to reviewing all matters relating to the operation, then you better wake up, sure everyone wants to see me with his eyes open, I'll give you a taste. Go think mom is very happy because they have come, poor thing he needed was someone with her family, even those who were unable to come are happy that we are not alone but are very sorry for not being here, but nothing happens , mom and dad's feel as if they were all with us and understand perfectly well why they can not come.

The doctor completed preparations with a of their machines and will, come later to bring the papers to my parents and see if they have any questions before starting the operation. While the phone keeps ringing, are the rest of the family and friends are keen to know how everything goes, it all goes well, I think, very quiet and I'm here and I have been to breakfast, to caress me over for no and take pictures with me, plus I have brought so many gifts for my birthday. It is now Dr. T to see how we are, talking to mom who seems to be very quiet but it moves as the conversation is getting very nervous, you know that there is little to start the operation. After talking with the doctor comes doctor with all documents and approvals that are required to sign, they become more nervous, ask all the questions that are left to the doctor and the answers with lots of peace and security, as called out of the room from the Canary Islands, is the tita X, and are all in house Yeya, they will go together to bring better, Mommy hold the tears and tells them he is fine and you are quiet, lying, as the phone hangs break to mourn and titas who are here reassure her.


Already, it's Celador for me, we go to the operating room under the elevator with my parents and I have in my crib, when they come to surgery Mommy and Daddy give me lots of kisses and this guy makes me so nice a room, I hear Mommy, crying a lot and very strong, I am calm I know that everything will be fine.

all waiting in the room also comes J , a neighbor of the people of dad who lives here and has been with a lot to my parents these days, then get some friends of Aunt N , my parents are very supported and that makes it a bit distracted and not spend all their time thinking about the operation. Mami low with all the women to the chapel and prays, asking God that everything goes well, I leave above all the operation, now afraid that his decision to have surgery cost me my life and will come to mind many memories, the day I was born, how happy they were all that day, my first smile, my games with my brother Azael, as I watched my cousin Yanelys and also my first trip to see the rest of my family in Extremadura, but also remember all the suffering they have endured with my disease and understand that this is what I had to do to try to go back to being happy at all, but that does not detract terribly frightened. Papi seems over, but his eyes show the fear you have, girl I know well and can not be fooled. At a time when Dad disappears from the room, no one notices, all of a sudden makes Sign Mommy, you said a moment out into the hallway, no one notices anything, his eyes watery and Mom gets scared, he says he just talk to the doctor and mommy thinks something has happened to me, reassures her daddy says no, the doctor says that everything is going well and finish in about an hour, I found a hard tissue, like a scar in the part that they thought all my problems either for that tissue, have been removed and everything is going perfectly, my parents hug and mom goes crazy to tell everyone, phone the rest and wait.

Soon the phone rings the room, the doctor tells them to fall already been completed. Run down to the operating room and waiting for the neurosurgeon, go and tell them that everything was great, they're going to get piped only as a precaution because the operation was long and I am very small, but the rest all goes well, say I am a very strong boy, but we already knew me. When you walk down the aisle I go asleep with the tube in his mouth, I go to the ICU and there I will prepare, all I have seen it happen but have to wait outside the neurologist spoke with my parents all went well, they embrace many times, do not believe, has passed the most painful. There are already 10 at night, again all to call and talk to mom while J Dad's friend who has helped a lot, screaming daddy called and woke up, I have removed the tube and I'm crying , yes yes, crying something had to go well, you all know that I was not crying because if you cry long and strong and also all pass me in the ICU and then leave to rest, Mommy stays with me the first part of the night, then down dad, spent the night more or less calm, but more importantly for now I have no crisis.

I wake up about 5 and a half in the morning, I am with my father and start to mourn, think that is like eating, but no one is safe. It is October 7, presumably if all goes well this afternoon I go to plant, the family goes back to Extremadura today, but I am not going to plant them is the death penalty before traveling. Do not stop mourn and are now 16 hours, my parents worried call all doctors, the doctor raises me painkillers but I do not stop complaining, are waiting for the neurosurgeon and neurologist, decided to make me a CT scan, although doctor does not think it's anything but want to avoid any danger. I will continue to .....................





PD I apologize for having taken so long to write this part, but we've been busy with the homecoming. For now everything is stable, thanks for your concern. I continue to count all in the next part, now we can sleep more than three hours straight and this is thanks to your colabaración . Hugs, Veronica and Carlos.

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story of my life 14 - MY FIRST BIRTHDAY

; ; ;

Well, it seems like yesterday when Mommy went to the Clinic I was born and has been a year, has been a very intense and difficult, with many tears and hard times an exhausting struggle, but we also moments good and happy and we will try, when all this happens in our memory are those good times and others it is just like a bad dream from which we have awakened and have only a faint memory.
; ;
In these moments pass by the head of my parents thousands of things, moments of pain and anguish, but also remember the great happiness they felt when in the hospital room together and we all saw mommy gave off the illusion that the eyes of my brother because he had become "big brother", also when I laughed so much with the little things that Azael me when my Yeya said or done by me.

Another thing that mom is not removed from the head and was tormented in all these months is the phrase that he said one day in the hospital and thank God today leave behind, " most of children with this problem fail to meet the year "because they have been wrong with this as with almost everything about my illness and that is what should make us stronger, everything ugly that we painted it over to be wrong , and today marks my first birthday with the illusion that I will soon start to move forward and leave the bad behind.

So my first small birthday party we have held in Clinic, Mom and Dad bought a chocolate cake and I have put some balloons around the room, we have very sad not to have everyone here, especially my little brother we take it very much, but we do it with enthusiasm and joy that tomorrow we will begin a life of happiness.

If, tomorrow, tomorrow is the big day, this week has been tough, the first operation, being connected with so many cables, so many crises and sleepless nights, but it was worth it because it was the day for which my parents have fought so hard, day in my healing and is closer.

So only can pray and ask God that all goes well in the operation. A hug to all of you who follow my blog and the family and friends are giving you so hard. Continue .......................

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story of my life 13

                                                                                     I'm

operated in the first operation, everything went well, you know I'm strong, I say it all, I was operated on 29 and the next day was perfect. The operation was a tad longer than my parents thought, but I came out perfect, awake and with great desire to eat, of course gave me nothing even though I fought for it, doctors are very stubborn, I could not convince them my screams so they gave me a sedative to rest, or not knowing that the nights are not my thing.



I spent the whole night, crisis after crisis, and my parents without sleep, but here in the ICU was very good and very nurses nice, but we were crazy to go to my room. The next day I went to the plant, had already eaten and the food very well tolerated. About 16 hours R doctor and the doctor has T connect to the machine, I have 24 wires inside my head and 19 more outside, my tita N says I look like a Martian looking.

Tonight

same, crisis after crisis, but hey at least now you already registered the computer, and that is very important, because that will determine exactly where the problem is and where it is necessary operate, we just have to pray that the outcome of this test coincides with the above and finally end this agony. I'll tell you next week the doctor says because I have the result of this test, on Tuesday, celebrating my birthday here, but I will celebrate in style with my brother and my family later. Continue ...............


not forget that tonight CART LOTS THAT DONATED THE CITY OF Firgas, good luck to those of you TICKETS. TOMORROW ANNOUNCE HERE FOR NUMBER.

WINNING NUMBER IS 984
;

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story of my life 12

Well we're in Barcelona, \u200b\u200btravel, more or less, the truth is that I stopped having seizures during the entire trip, until they had to wear a Stesolid, after that I was not aware of anything, just sleep and sleep .

We have been installed, this room is "small" so we have said is only for one day, because we need a larger room after the first operation to fit either the team doctor. Tomorrow we will go to surgery for the first operation, she placed wires inside my head to delimit what will be the piece of brain that will have to remove my next week.

Here as always treat us very well over nurses remind us and we have plenty in mind. My parents are a little nervous but tonight's visit by the neurosurgeon and neurologist, I have calmed down a lot. My night is still so movidito as travel, many crises, but good as mom says, it is little. Now we just pray that everything goes well and may soon be back home with my brother, although just go and made us very much.

You know, we will inform you of my progress and thanks to all of you have been able to reach this point. A hug.

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story of my life 11

                                                                             

Well, not long ago that I tell you how my life, the last to comment something were my parents, did a small tour and has been collecting money for my operation. My Great Friends, in that entry does not go all the friends I have, missing many that even I know, has been very exciting to see how people have identified with me, and my story, I hope you continue reading this blog, because as Daddy says "this does not end here," is knowing the end, and we all hope to be when it is well and be as independent as possible.

Anyway my parents have the idea that through this blog will try to help more people like us, can not depend on their means to try to lead a dignified life as happy as possible, but will have to rely on the support, solidarity and love of many people. We are so very fortunate because we have a lot of people who love us and help us and at the same time an infinite strength and a desire that I healed and sure with everyone's support we will succeed.

These weeks have not been better about my illness, I still have my crisis, maybe fewer, because as I'm becoming a little lady and I have withdrawn a lot of medication, because I stay awake longer, so I have less difficulty, but when I enter the we sleep in the same, even the crisis are stronger. The family is not doing very well now when I have far cry crisis, and seems to cry, like I ache and really as if I was aware of everything and had so much fear. Mom spends the day with me and when I get the crisis grabs me and tells me I am not afraid, that nothing happens that she is here, I have no reason to be afraid, it seems that reassures me because even though they continue in crisis, when mommy takes me in his arms ground stop screaming.

I like that I have in my arms, although I can not do much, I'm growing a lot, and weight much, hehehehe, I'm eating great, there was a time where mom was worried a bit, lost some appetite and I got scared because that never happened, but it was only to mislead, because in a few days I have to eat as well as before, you know that as a mom says "Thank God I never lost my appetite, I am worthy son of my parents and brother of Azael, here at home we are all good in my mouth." But that's what keeps me strong in spite of my illness, the doctor and sent me to do some analysis, I did a Saturday because the mom did not want to take it alone, dad came with us, we punctured the two, and I Azael . Dad went first with Azael, Mom would not go if my brother was put mimosine, but no, he is already an older man, then I fell to me, we were all, Daddy took me in his arms, was very nervous mom does not like to see me prick, as I do not cry gives more trouble and gets very nervous, I pricked one time and it seemed fine, found the vein to the first, but ....... stood out blood, the vein is not served so playing in the other arm, Mommy had to go and was very upset, expected to be better, Daddy is very brave and held me, the second was the charm, everything was fast and very well.

We have been given the results, they have been sent by fax to my doctor, and has told my parents that are fine, I have a perfect analytical, I'm strong to the operation.

day is fast approaching and as you all know a trip would not be normal if I get sick, yeah, another cold big hit buffffff to scare them to my parents, is Saturday, September 11 and the operation is for the week 27 and I have to take the early morning at the hospital, I have a bad cough and can not soothe me with anything. Mommy has a hard time on the road, is so nervous and it was about breaking operation to mourn in the car, it does not slow down for me I learned a lot, I'm half asleep but I feel its lágrinas. We arrived at the hospital and I see the doctor, says that no need to worry, it's just laryngitis, a good catarrito small nose and throat, but as long as I'm complicated and Tuesday I have to start with antibiotics, mom sucking all day with this device and more drugs, but served well to something, today I am now much better I'll be ready for operation.

already have tickets, we drove the 28 and will operate this week probably, I am calm at the moment, of course I do not hear anything, but mom what's going wrong, you are very well received messages of support and the whole world asked to pray for us, we are sure that everything goes well.

Raising money for my operation has been amazing, just need to be completed to sell papers lottery and the basket that the city of my people are raffling off, also in La Palma, an island in my archipelago held a gala this week, with that already have the money, here are a picture of the ballot with the number and a basket, it will be nice to me most reading this blog and see what you have done for me. Well you know do not fail to read my blog, yet I have to tell you how good I am getting, after an operation.

This is the lottery, you know, so do not be compradla still fast that we run, sure that in addition heal me I will give luck to all. You can buy at the toy PAMD Coria, Plasencia in several bars and Cilleros in and Caja Duero Caja Extremadura, also in Las Palmas is my family and through mesenger know you can ask my mom.

Cart

And now donating Firgas City Council with the collaboration of the shops in town, the draw will take place on October 1 for the winning number of the ONCE that day, run to buy tickets, if you buy them you know with a message to mesenger or asking the council will tell businesses that have them.

Until next time, hopefully you from Barcelona. Continue ...........................

Hungry With The Stomach Flu

MY GREAT FRIENDS

Hi all, I'm Veronica Aimar's mother, the protagonist of this story, this is one of the parties to this blog more emotional because it will reflect the amount of friends you have. On the one hand those of Cilleros and other nearby villages and from Las Palmas, but we also have the rest of Spain, everywhere have come up friends who are helping us to try to help my baby. My side is also Carlos, the father of Aimar, between the two of you going to tell us what has happened in these weeks.

This is the album's cover photo of the gala held by Aimar in Cilleros, she attended a lot of people nearby towns, including Coria, the second people in our family, and especially Cilleros the most complete.

Some of the volunteers, friends of the usual penalty that have not taken a picture together! . Aimar will have a beautiful photo album will be the envy of all children in their class, when you go to school because they will tell their peers who has a thousand friends who have made a miracle for him to be at school.

nice to say, he is FERNANDO, for us our eyes Cilleros, and a window for people, to our blog. Thanks to him we realized the magnitude that has been the case with my son in the village, it was fantastic to see and feel through the comments on your page and photos.

And of course as no ....

Our family Extremadura almost complete, our representation here in town, supporting and giving thank you all for what you are doing for our little boy.

This Aimar gala raised for a whopping amount of € 7810.69 UNBELIEVABLE!.

Also Cilleros Housewives IRIHAL the rock, held a raffle that was raffled at the gala with what raised over 1000 €.

Now Las Palmas, was more familiar, many people could not attend, but had a lot of row O.

acted to delight viewers Academy of Alexia Rodriguez (represented a musical) and the group Friends of the Stone Folk, of San Jose.

18:30

open doors and people began to arrive and begin to register, the event will start at 19:30.

Here are nearly full when they were ending the function, two people were missing, the director and a new signing.

with Alexia

Here are the principal, and Azael at the forefront, of course.

And here with the new signing, star of night, who also wanted to take the stage, he behaved beautifully, despite not having a good night and spend practically all spent the morning asleep, woke up at the beginning of the show and enjoyed a whole.

Folk This is the group that ended the gala and made us mourn with their beautiful songs.

This gala raised € 2955 , 50% of row O, because the event was held during the week in the auditorium of the Colegio Jaime Balmes could not attend all those who purchased their entry as well and all we thank all the people bought their input.

Before these galas, held in Cilleros an indoor football match between single and married, raised € 593.18 . These are the stars, they came together, rallied and gave their breath for La Sonrisa De Aimar.

From here to thank everyone who attended and organized these events, and also to all persons who have made contributions to our account numbers, tell everyone that even though I can never express our thankful for feelings.

Tell them we sell both Cilleros, Plasencia and Coria and in Las Palmas, and also shares lottery papers in Las Palmas a raffle for a basket that gave us Firgas City Council.

TELL YOU THAT IF WE SELL ALL OF THESE VOLET

HAVE THE MONEY NEEDED TO OPERATE A AIMAR

THANKS FRIENDS.

OPERATION IS MADE AFTER SEPTEMBER 25.

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story of my life 10

Well, we're in Madrid again, azael come to pick up and go to the people of dad, Tito come looking for us and lead us in his car. My parents never stop talking on the phone with the family, especially Mom (on the phone Daddy overwhelms a little bit) so it is she who tells it all, Dad is happy but at the same time a little nervous. Let's spend a few days the people, this year so my tests can not come on vacation in August, as they do every year, so we took to see family and friends. I took a few days almost without crisis, with the new treatment have been greatly reduced but I can not believe it mom, the truth is that I did not. This is what usually happens every time we change the medication.

Today we dropped "the pipe" to sit on the terrace here is fine and we spent a great time until dinner time, and we were going to go home when K dad's cousin and his wife N invite us to his home for dinner there. Let's all very comfortable and we are there when I start to fall asleep. This is the most uncomfortable of daddies, when I start to fall asleep, do not stop looking at me all the time, although it took exactly 7 days almost seizure free, they know that sooner or later it will start again and that time is tonight, give me a very strong crisis and N, who are not used and is also very sensitive for their future motherhood, it gets a little bit scared and nervous. My parents too, "and was taking" her daddy says mommy, mommy is just nods and somewhat sad, but try to hide it.

From this moment begins the agony again, on without breaks, the sleepless nights over three hours. Mommy called the doctor and tells him that have become the crisis, the doctor begins to try to regulate the drug, but not on top mom does not know if the crisis or the treatment begins to realize that diverting her eyes.

The regulation of medicine does not work so we introduce another, the LUMINALETAS, but this also improved. In the town very well, we learned the new pool Cilleros and it is great, my brother passed it P pipe with a girlfriend of hers who is the daughter of T and A, Mommy and Daddy's friends, the poor is one of the few days that really happens Vacation and due to my illness this year has not enjoyed, I've gotten myself a little in the pool house of my auntie, hopefully next summer I will be better and we all enjoy.

go home now, has been shortie, but intense, next year will be better ........... insurance. We said goodbye to the titas and cousins, all are sad but hopefully, hopefully, the doctor does not take much to give us the test results.


We are in the palms, I'm less hinchadito, all notice and they are very happy they do not know is that I will have to medicate with HIDROALTESONA (steroids) because I have damaged adrenal glands taking this medicine so long, Dr. R already angry at the time when he learned he had long been taking it and withdrew, but the damage was done. My dad still wanted to call the doctor in Madrid as a reminder that a patient was so severe in Las Palmas and tell about the steroids and my glands, but Mom tells him let's not worth it, the important thing now is to pull forward. The doctor called us almost every day for medication, it's incredible dedication to their patients, we see that he likes his profession and likes to heal people. We are finishing

July, Mommy called the doctor a day in the morning because I had not to vary one night a little "movidito." The doctor gives us some guidelines and mom to the doctor asks how's the test report and it states that there is very little and what is certain is that their epilepsy is local and is operable, Yeya we are at home mommy and cut phone and begins to mourn and to embrace them all, Yeya to B (his friend) and everyone, try to call dad and tell the whole world Dr. just need to finish the report to go to AS ..... to request the operation.

We are in August and the doctor is on vacation in South America, but nonetheless continues to call every day, says that between 10 and 20 ends the report and tells us something. Today is day 12 and we called the doctor, the study is completed and has the report, we can apply the operation to the insurance company because since we have the authority and the doctor we enter the holiday date to the operation as soon as possible because I have not stopped crisis and time is not playing to our favor.

addresses AS Mami ..... and requested surgery. What a surprise IS THE DENIED, good according to what they are saying is you have to wait for an answer of the claim because my file is in Madrid and from here you can not do anything, mom asked how long it can take and you answer is not known, they have a few months to respond. My parents can not believe it, you can not imagine the response, so you have to sit home and watch it do I have to operate in September or yes, this can not be further delay.


So we are home and my parents are very serious, we must decide what to do and how to get the money, the bank can no longer think so much so that there is no other helps to ask friends and family , but nonetheless with the help of all will not reach thus was born the idea of \u200b\u200basking the rest of Spain with the idea that the day the insurance company will pay them back the amount you donate to my operation and that all money donated comes anonymous as someone else I needed to heal.

Well, that is armed is incredible, the people "CILLEROS" this revolution, are all united by the cause and are doing everything that I regain my smile but not only them, also are transmitting these desire to help the entire Sierra de Gata, from there all are helping friends and my parents do not know how agradesercelo, they are my grandmother my family in the village. Coria also is working and is helping us, from here I thank you and I send my love to my family Extremadura, We love you. And here too are all dumped to the cause, friends, / Colleagues of mom and dad and my family as not Canaria, although I know, I want.


not fail to read my blog, I will continue to count as things go and I will write from barcelona.BESOS

now to August 25 and we have a third party, and is less heartfelt thanks, AIMAR AND FAMILY.

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story of my life 9

Sunday, just arrived in Barcelona on the AVE, and we will enter the clinic, to see how it is given this week.

We are here with us to the room on the second floor, people are very friendly, we sat and waited for the coming of the doctor or a nurse. We come to see the doctor and that it is Sunday, I told my parents that tomorrow morning I will have a test, a PET, to that accompanying the first MRI, and then I put the electrodes for Video-EEG.

As I'm having a lot of crisis, mommy and daddy take turns to stay awake and take care, however they are so nervous about not sleeping either. I'm also up phlegm again, mom thinks I have set wrong with the air conditioning of the plane and train.

We are a Monday, is 8 and a half in the morning and come and get, let me down for PET, have to be anesthetized and put on a medication through the vein, leaving the box where mom was very difficult because as I prick she gets nervous. Papi goes, I'm numb and in the MRI machine, comes with Mommy and wait outside.

There, I'm half asleep but listen to the doctor that I am quite mucus in the chest and that we must begin to treat it as well continue on Friday may not me the other tests because I can numb again.

We are again in the room, come Dr. T and the nurse to begin preparing the case, the doctor is finishing with another older child who is in the other plant. Doctor arrives and begins the process of placing the electrodes, Mom's account, believed to be 24, have taken about 3 hours colocármelos, the doctor has done with patience and calmness. I'm connected to a computer and I are over taxing on video, there is also a signal that they press when they notice I'm having a crisis, and is recorded on the computer. And we are on Tuesday and the doctor comes to see how it is going and also happy because it is the result of PET (we note that this is private, go quickly), tells us that it is likely that my epilepsy is a problem on the right side of the brain, but that everything will be confirmed with the results of other tests. Step

almost 5 days connected to the computer, the doctor is about four times daily to the room, both morning and afternoon-evening, the hospital is usually about 23 hours apart is also Dr. T is the doctor who helps at the clinic, often called the room to ask about my condition, because in the end I caught another cold of mine, I have oxygen, aerosols, syrups and antibiotics, I have a shock treatment but do not respond well enough to make me numb and the other evidence on Friday, when I commented to my parents they were the moral ground, so much time waiting for all this and having a diagnosis and see if give something to heal and go and grab another cold, jolin that bad luck, Mommy can not help, another setback, is now so depleted that it will very low morale, Daddy has to calm her and encourage her. Well is determined, I can not anesthesia is impossible, but the doctor tells us that as I am a very quiet child and I spend almost all day sleeping maybe can get tested without anesthesia, well let's be positive. While I have the electrodes, the doctor has tried other drugs and I think one is more or less well, Sabril, to see how tough we are.

Friday, I removed the electrodes, taking off everything very well and very fast, but the stick that I have stayed in my head almost 20 days. We went down to try to get tested without anesthesia, Mom prays a lot to make it so that everything goes well and I can do. One test is Magnetoencephalography, this machine only have it in two parts of Spain, and this is the first to arrive, the other not long ago that have acquired a crisis gives me while I make, but overall really good and I can be tested.

After that comes another MRI test consists of two parts, with markers and one without them, this is more complicated, here I must be absolutely still and they still fear that making too much noise in case I get nervous, but I do great, I'm so tired I sleep and not wake up until you finish the entire test. When I wake up I see that my parents are happy to have been able to perform all tests now All you have to wait for the result, which is not bad.

Saturday, we are waiting for the doctor, the doctor tells us that ultimately we can travel, that I'm more of a cold, I almost have to Nens taken to hospital, but you do not, we can return Madrid to look for my brother. Comes the doctor, gives us the pattern of the new medication and told us that now has to study in detail the evidence, especially the video-EEG, which is very laborious, but I said to Daddy and Mommy that probably is the possibility of surgery to Mommy's heart skips a beat, look at daddy and break to mourn, do not believe, at last hope. Le ask the doctor more or less the operation would think that if only the study were some 12,000 € operation will imagine that much money. The doctor tells them to leave some 60,000 € and they are not amazed, despite being a lot of money, as expected, have been referred to similar transactions and are about the money, the clinic also is quite expensive, but worth it, facilities and especially the professionals are wonderful, worthwhile treatment are very friendly and treat us very well, the rooms are for the patient and a companion, but let them stay without putting the two issues because they know they always have to be a awake. Think over to seek money as the most important thing is that I get well, the two are crazy, hug and cry together, and the mess, each take a phone and inform the whole family is great news.

we go from Barcelona, \u200b\u200bbut we're happy, I do not because I have that thing in the head and my parents because they have a hope that I get well. Follow ...................

Kates Playground New Shot

story of my life 8

I'm better stomach virus, I'm about to give us the high, to go to Barcelona. is June 8th and it's already 16 hours, and let in to visit, my dad handed me my lunch today at two half day so they will be ready to come, come, come other daddies, "and mine, and why mommy is not coming to me now and why is the nurse giving me a snack?, jolin something has happened, it's almost 20 hours and was just visiting . There is daddy, I get a little clingy when I hear it coming, I look at it with puzzled face, I want to say I am very upset because they have not come to me before, go and Mommy's wrong, why it is sitting?. I hear them talk to the nurses and mom wants me to catch and put me in her arms, spoil me and tells me he has had a "small incident" has been dropped and had to go to the hospital she is very sad, not I wanted to leave me alone this afternoon, but still feels that it will not be able to travel with me to Barcelona, \u200b\u200b(can not believe that neither it is known, so stubborn he is, this is me, if you know me).

I are discharged on the ninth day, and come to get me, mom does not stay at home or with his foot in plaster, has a torn ligament sprain with more work for daddy, mommy and me mailto injured, but hey crutches she defends. That desire to get home and eat home cooking, it has nothing to do with the hospital.

Mami travels with us, of course. We got off the plane and take a taxi, going to the doctor, the nurse M we had to reschedule the query multiple times, because many times I was going to be discharged but then did something we had to wait. We are in the consultation and the first thing is to become an EEG, again, but this takes a little longer. At a time when nurses call the doctor and out of the consultation, puts on her glasses and starts to look at the chart "in situ". After a while there, looking at the layout of the EEG, was dismissed for a moment and returns to the query.

me finally finish the test and return to the waiting room, we have a girl in front, my parents are a little nervous, but I as I do is sleep. We went in consultation

and the doctor asked my parents my medical reports, he begins to watch them and copy them out, then asks them to recount a bit about my medical history. They tell the most important and explain what have been the drugs that have problems and the impact it has had on me. When completed, the doctor first thing I said is that I withdraw the Hidroaltesona ba (the steroids), because this medication is only a shock medication is administered by a certain time and if does not work and cuts crisis, should be withdrawn because of side effects are very dangerous.

Then the pattern tells us that we will have to go on medication because I'm execed medicated and explains that what he thinks is that I have a problem with the right brain, and might have surgery option but to confirm that you have to get a series of studies specific epilepsy unit. As from the beginning, the doctor tells us that we can advise, but we can decide at any time when making this treatment because the clinic where the study works out a bit expensive, but my parents are clear that they will go all the way to the doctor, it is also the rest of epilepsy units that sent emails and called dad to this day, remain unanswered, for what to ask about how much money is involved. The doctor removes accounts and they said that about 12,000 €, Mom looks at Dad waiting for daddy look and decide, yes, but Daddy does not give option, directly tells the doctor to tell them when I can enter the hospital. They were clear that he needed to know that diagnosis, and Dr. R. ... assured them that after this study at least going to have a diagnosis and it was going to try to guide it was the most favorable position for my evolution.

So the consultation we will know that today we have to enter and get tested, my parents will conmenta the nurse more by mid-next week and will have the money and would enter the reserve. We

to Las Palmas and begins the quest for money, profit that comes Daddy and Mommy pay some extra money charged ...... HA and the rest ask for a credit because the money and the reserve: Meanwhile, to me the withdrawal of Hidroaltesona I do not feel well and have not stopped many crisis and increasingly strong and standing up with his mom is having badly, with both trot is not going to heal well, so daddy (poor), no rest, yo, mommy, Azael and his work, is a super-dad (so says mom.)
I have to cut hair for testing, how strange I am!

Off we go to the doctor, we have to stop in Madrid to leave Azael, it stays there with my godmother and cousins \u200b\u200band we go to the hospital. Azael is thrilled to be with cousins \u200b\u200band because he loves the world, to my parents too.

Here we are all celebrating the passage to the semifinals, we are in July and with the medication change crisis have not stopped to see what this takes us, my parents are somewhat concerned, the study is very expensive and unaware that the doctor can say after having the results, mom's greatest fear you have is that if this can not help us, do not know where to go next, but do not want to think about it now, try to relax than a week of hospitalization will be quite hard.

will continue ......................................

Japansese Gropped Subway

story of my life 7

Well we are in Madrid, I'm a little moquito, so my parents take me to the clinic Moncloa to stay calm, the doctor looks at me and tells my parents do not worry that with a spray and vacuum will be better and so happens.
Tomorrow we go to the neuro-pediatrician again, we are very excited to see what he says, because mommy and daddy are cansadísimos, sleep is that there are turns three more hours or less, I sleep with them, touch it makes my head on your arm, if you fall asleep and I have a crisis, that notice to move, although not usually fall asleep, but for me better I am very arropadito with them. I am very swollen, but nothing happens, the doctor will see me soon and will look at corticosteroids.

Well we arrived early, as always, the doctor has not arrived yet so we waited in the waiting room, probably will be the first. I called to make me the EEG, low to daddy, and then up again, there to await the outcome and the coming of the doctor.

While we wait I have a crisis to another, but clearly, more Light. And touches us, that nerves to see what he says, as will be the test, what do you think the doctor reduced my crisis ?.... sure everything will be better.

entered, the doctor is a bit distant and a bit serious, try to keep the guy, but is that mom has a very bad idea, talk a little with the doctor as it has been this month, although he was aware of phone because mom called him, so start looking at the graph of EEG, Mom asked that such is, if it has a very slow path (that means that my brain will not like the rest, which is suffering from the crisis) and the doctor says yes it's wrong, I think he realizes that their medications do not work for me and that epilepsy is not as simple as we originally said. Mami I notice very dry and very distant, almost eager to finish and our turn in the consultation, slightly modifies the medication and tells us stay in touch as hitherto, by phone, Dad asked if we and appointments says no need, already on the phone we would see.

Mami very sad and bad out of the consultation, being on the street gives daddy dizzy and have to keep this time until he is defeated. Just think back to the same thing lost another doctor who is not able to recognize that things are slipping from their hands. Everyone is calling and my parents are not able to tell the truth at all, must first composed them before telling others, all had put our faith in this doctor, so ......... ..........

Well it's Sunday and we're leaving to go home, we're not happy, mummy returns to have red eyes, think again about spending time crying in front of me does not but I intuit and therefore I get a little uncomfortable, I do not feel well, daddy's face is also very sad, I notice it, but hide their feelings behind that beard makes me so tickled when he plays me.

A photo together the four, try to laugh a little, forces have to reset and start from scratch.

resume Cuesta many things, my parents are very disappointed, but they have no other, turn their ugly moments, they are lost for the umpteenth time, look at me and thought I read, what will now we where going to throw? meanwhile, back to work mom and dad too.

But their heads are still trying to find solutions, find hope, to not let the door without knocking, nor a without a single test, without visiting any site.

To top it off, I turn to put more unwell and other income, was what we needed, it was very hard for my titas, I'm with some coughing, but not both, mom gives me a snack and leave me alone with my father, my auntie lives in the house next door and now they both are, Azael is playing with raw outside, all seems calm.

start with a cough a bit strange and dad built me \u200b\u200band start to vomit, that strange thing is my snack with something else, I think it is mucus, I start to get a little choked, me daddy but I can not help, call one of my running titas, when comes home and sees me and sees the face of despair as they can catch me daddy and run the car, do not tell anyone anything, and run off to the hospital Perpetuo Socorro. Meanwhile mom had called ahead and heard me coughing, start calling repeatedly, something is wrong, I feel it is not normal that Daddy does not pick up the phone. Tita calls home and asks them to call daddy, X was expected to stop there, call them! tita said the other, I do not open or Vero answer me! not what happens, Mom and more and can not hear over the phone away Azael say that Dad and Aunt left in the car with Aimar. God and left without warning, something happened!. Mommy knows what I have to go hospital and runs del trabajo, coge un taxi y cuando está llegando ve el coche de papi, mal aparcado, con los cuatro indicadores y sin cerrar. Ya pasó algo grave, entra sin decirle nada a nadie y ve a tita llorando en la sala de espera, no le pregunta nada, sabe exactamente donde está urgencias de pediatría y entra directamente. Las chicas ya la conocen y le dicen en que BOX estoy, no estoy bien, casi no puedo respirar, estoy vomitando mucha flema y respiro muy agitado, el médico está hablando con papi, mami entra y escucha que me llevan en ambulancia medicalizada al Materno Infantil y ella ni se cree que otra vez estemos en esta situación.

Hay que ponerme un aerosol mientras para aguantar, así que me quedo con papi y mami sale to ask as it is and tell auntie we go to Mother, she wonders what happened, Aunt is pregnant and is very nervous, crying, tells him he has been the worst moment of his life, tells him that the trip was made eternal, even though daddy was running like crazy, I thought it would not arrive in time, I was almost blue and not stop to throw phlegm through the mouth and nose, she had me in his arms and dad driving have been only 20 minutes away, but I found 200! Mommy tries to calm down, as it is not good to be so nervous.

I have to decide Emergency Maternal and ride the UMI, again here I can not believe, this time without sedation but with oxygen, many medications and cables again. Thank God one step at night, the next day I go to plant sprays and the shock treatment of the ICU, they make me improve a lot but I still have a lot of income.

physicians suggest that this plant is due to the voluntary release of the last entry, but mom says they have medical papers showing that for 5 days was perfect, that his lungs were camaraderie and had no respiratory problems and Mommy reminds them that they are doctors and know well that bronchiolitis is now and then, it's nothing new.

Meanwhile, Dad tries to talk to the doctor in Madrid to tell her the situation, but does not answer the phone will be bundled in consultation! think daddy, mommy also tries a little while later, he also answers the call, good call me when you see the call, he knows my number!. How wrong they are, they try again two more times and give up, the doctor will not return to assist me, to this day has not called back to ask me, "which turned out to be human and professional," that is what I hear from mom every time he talks about him and always ends by saying, "but there should be no bad blood, we have enough problems and concerns us now. "

While I am hospitalized, my parents realize that this doctor does not work and inform themselves and learn that there are special units of Epilepsy in Spain, and was pleased, it is important to take me to one, So they think, because it is a site specializing in my condition, who better to help them. They contact my insurance ..... AS and hand over a petition which asked my pediatrician referred me to this unit due to my illness and poor outcome. Another door opens, another hope. ...... AS responds that grants us take a unit of epilepsy, do not consider it necessary because they provide me with neurologists and with that is enough. Enough? wonder my daddy, do not realize that neurologists I have been for nothing?. Nothing mommy and daddy make resources but also look for their media, Daddy sends messages and calls to various epilepsy centers, just answer one, TEKNON CLINIC. The consultation is a bit expensive but the doctor said to mom that there will have many things clear, and does not intend to "give us appointment to when you can, right now the hospital is small but since we go out there to have "

At the same time to me in the hospital, I spread the Rota-Virus, another disappointment again, I start to have a" poop "a very liquid and vomiting little from time to time. This is the fear of mom, whenever I do get hospitalized illness, I am the worst baby gives it, I'm over 10 days with the virus, I have to put medication and serum because they are dropping me important values Laboratory tests of blood, but I ended recovering. Change of destination, this time let's Barcelona, \u200b\u200bDr. Ru ...... espera.Ya us we are in June, and there is little to see a light, but still do not know.


will continue ..........................

Diaper Instead Of Maxi

story of my life 6

We are a Monday, led to crisis throughout the weekend, we're waiting for daddy gets to go to the hospital, just poor off the boat and I ran to the consultation of neuro-pediatricians!.

also have to go with the report to start my physical rehabilitation and early intervention. The report specifies where we have to go to make an appointment to get started as soon as possible everything and you can start working out and trying to recover what I lost.

daddy comes and we go to the doctor, start ups and downs of medication, left the hospital with 4 anticonvulsants, although one of them is in retreat, oh I'm still not the ideal dose for me tells us the neuro-pediatrician, so they start increases. Anticonvulsants, like almost all drugs, is in relation to weight, so I try to upload them gradually to the maximum that my age and my body to tolerate. We are in March, almost three times a week going to the doctor, the doctors up the medication but I'm still with difficulty, so again for a visit. Every time we go we discussed and can not rise more drugs! but in the following query re upload. The doctors decided to send me an injection of ACTH, is a very sensitive medication, must be very careful with it because it has many side effects, is almost the last possibility is a strong medication used in children with West syndrome, the epileptic syndrome is a very serious disease and treated with this medicine.

started with him, and also with the daily monitoring of my vital signs, I have to go every day at the hospital Perpetual Help prick and prick before I take vital signs, blood pressure, heart rate and saturation blood oxygen, luckily, the nurses and assistants know us and are very good.

Meanwhile, Daddy and Mommy fixing what my rehabilitation, delivered all the documentation for the early attention, but first we to pass an initial assessment of my state, at the Center Base where you have to fix all this will say that about 8 or 10 months before I make an appointment, my mom gets angry and tells them that it is making "care early "early and start placing complaints. At the same time trying to get other sites and perform such rehabilitation are ASPACE, they are hollow but commented that the services cost 25 €, not to be charged to assist you but it is a partnership and what you give is a small contribution so that everything works well, my parents find it a negligible amount for what it is and decide to make an appointment, you mami me for the first valuation and know the team ASPACE palms are all wonderful and above fully understand what we are going as we are not the first case they have. My early rehabilitative care is wonderful, very loving and kind to me, I think we get on well, though I'm going to spend almost the entire section sleeping.

meantime, these shots I have cut off the crisis, now I have the 4 anticonvulsants ACTH, crises are but I feel sick, do not cry as I express it with a nagging, all are concerned and the doctor who more, decides to withdraw the injection because he says "life is taking no chances" mom gives a downturn because this medication I had no crisis but at the same time does not happen to me worse. A day the same, the seizures start, more and become stronger and pilgrimages to visit.

Today is Friday, do not remember that exact day of April, last night I did not stop and I have very bad crisis, let urgent medical consultation or daddy or mommy going to work, this is the last day I'm going to query ; of Maternal and Child Neurology, the doctor sees me and send me back to the ACTH, Mommy does not understand anything, had not said that he risked life?, ie risk of death, does not understand, I back up the medication, but if the last day he said we were on the tops! my parents feel as if they were flying blind, as if tubiesen no idea what to do as well in that consultation the doctor spends more time tending the phone for his private practice than attending to me. Mommy Daddy has to control not to do anything serious, because it is very angry, all I can say is I am very concerned brain and imply that I'm going to look bad, he may be right but maybe not, he still does not I can assure. This is the trigger for my parents seek out another doctor.

Call 902 from our private insurance and give a neuro-pediatric center of Madrid that has an agreement with AS ...., do not hesitate to call the doctor urgently and undertake to address this Monday. Start moving things and find tickets, we'll stay home godmother.


The doctor is testing me, are like three days and after this tells us is not as serious as we believe, that I will change all medication and I will improve, my parents leave the consultation with joy can not believe that everything is so nice here and so black on the palms, but they stick to the good news, is true that this doctor has shown more interest in me than the other doctor. I change the medication and I removed the ACTH, but sends me a steroid pill.

At first, as always, the medication works, my parents maintain ongoing conversations with the doctor, and I have an appointment for May, also coincides with the fellowship of my cousin so we're anxious to see how they respond to this long-term treatment . The steroids make me swell up a lot and leave me a little more hair, but I'm just looking, that they all say.

day is about the appointment the new doctor, I still have seizures but fewer and looser, and like every time we travel I get unwell, another great cold, and of course, another hospital, my parents are very concerned because the appointment with the neuro- pediatrician is very important because you have to see if I have to remove and hidroaltesona (the steroids I take, and should not be lengthened in time consumption), also have to value my epilepsy with EEG is a test routine check on my head inside, to me they have done since the first time and I'm a bit tired, but good is an occupational hazard, ie I have no choice, lol.

all over me about my illness I am not vaccinated and mom is afraid that re-infect me of something else in the hospital, there are many babies unwell and I have no vaccines, so mom talks to the plant doctor, who met before and told him if what he sees I'm stable, I can be discharged, the doctor says he appreciates but that "protocol", (who is this man, I wonder, because whenever he's in everything and never over does not mean mom) can not give me discharged without being a minimum of days monitored. Then mom decides that if I see well have to take the voluntary discharge.

already well and keep breathing oxygen saturation, she knows suck up my mosquito machine and left us asking my high voluntary and when we get to Madrid we go to the clinic Moncloa is the insurance company to confirm that I am fine.

will continue ............